Photo
by Deborah Stone
“
Life is grand,” says Amanda Gilbert of
Woodinville. As she makes her daily rounds through the
neighborhood, Amanda Gilbert gets a lot of
waves from folks in their cars passing by.
She smiles at everyone because as she admits,
she doesn’t always see their faces clearly
and doesn’t want to offend anyone she
might know.
“It’s safer that way,” comments
Gilbert. “But the truth is that I’m
a friendly person and no matter if I know the
people who wave at me or not, I figure it’s
always nice to give others a friendly face
as they go by.”
Gilbert does a three mile circuit five days
a week, but you won’t see her walking
or jogging or even cycling around the streets
near her home. The Woodinville woman takes
her daily exercise in her wheelchair, up one
hill and down another, at a pace that often
challenges joggers to keep up with her.
She has become a familiar sight, not only
to all her neighbors, but also to the workmen
who are on the job in the area. “They
like to yell encouraging things to me,” says
Gilbert, “like, ‘you go girl!’ which
always makes me laugh.”
There’s not much that doesn’t
make her laugh or respond enthusiastically,
yet many people might not have such a positive
outlook on life if they were in Gilbert’s
position. The 49-year-old woman has multiple
sclerosis or MS, an autoimmune disease that
affects the central nervous system. She was
diagnosed 21 years ago after having suffered
her second attack.
“I had already had one attack and then
I felt better and then I had this second attack
where I was really dizzy and my vision was
affected,” explains Gilbert. “I
think the doctors thought I initially had a
brain tumor, but then they concluded it was
MS. It was a relief to find out it was MS and
then they told me to go away and live well.
That was the best advice anyone’s given
me and I’ve run with it ever since.”
Gilbert viewed her MS diagnosis as a “non-event,” as
she had just had her first baby and she and
her husband were getting ready to move from
Minneapolis to the Seattle area. Life was full
and she was too busy to let the diagnosis occupy
her every waking thought. For the next 13 years,
the attacks were few and far between and no
one ever knew she had the disease. She could
do everything she wanted and kept active as
a stay-at-home mom, raising her two daughters.
At the 15-year mark, Gilbert had what she
considers a significant attack, which left
her with some neurological damage and mobility
issues. Her mobility continued to decrease
over the next several years and she went from
using a cane to a walker.
Two and a half years ago, she made the move
to a wheelchair full-time. “It was just
easier to be in a wheelchair because before
I was just getting slower and slower and I
had to stop and rest all the time,” says
Gilbert. “Now I can keep going and continue
to do everything I want to do. I always tell
people that my wheelchair gives me much more
than it takes away.”
When she first got her light-weight titanium
wheelchair, it took 10 days of consistent effort
before she was able to make it up her long,
uphill driveway, but Gilbert was determined
to achieve her goal of being able to leave
her home on her own might.
After mastering the driveway, she got to the
mailbox and then to the end of her street.
She began increasing her distance, working
up to the three miles she now does each day.
“Sure it was hard at first,” she
says, “but it was a good challenge for
me and anyone who knows me knows that I rise
to challenges. If you tell me I won’t
be able to do something, I will prove you wrong.”
As a result of the exercise she does, Gilbert’s
upper body has become strong and she admits
that she is in better shape physically now
than she was before. Women who see her always
tell her how envious they are of her developed
arms.
“They say how they work out with weights
and never achieve the same results,” adds
Gilbert. “I tell them to get in a wheelchair
and do what I do and they’ll soon have
the arms they want.”
Gilbert is very knowledgeable about MS, having
lived with the condition for so many years.
She has used her experiences to lead a support
group at Evergreen Hospital and motivate others
with the disease to view their conditions optimistically.
With her wit and humor, she is a natural at
making people feel comfortable, though she
never sugar coats the facts or allows others
to wallow in self pity.
“People sometimes seem to want to act
like they’re professionally disabled,” explains
Gilbert. “And it’s easy to allow
those around you to do everything for you.
But they’re enabling you and that’s
not good. The more you do, the more you can
do. I tell people with MS that it is their
job to fight the disease.” She continues, “There’s
nothing wrong in feeling sorry for yourself
on occasion, as long as you put parameters
on it and it only lasts for a short period
of time. It’s healthy to vent, but then
move on.” Gilbert feels there are so
many worse diseases in comparison to MS. She
is impressed with what other people have to
contend with and views her condition as relatively
easy to manage and maintain a high quality
of life. Her husband, an airline pilot, and
daughters accept the MS, but they don’t
dwell on it and they rarely express concerns. “Everyone’s
independent in my family,” explains Gilbert. “My
husband is gone for periods of time for his
work and my daughters are away at college.
They all know I can cope and that I’m
a strong person. They don’t worry about
me because my life is normal. My husband, of
course, asks what he can do to help and will
do things like make it easier for me to get
around and do things in the house on my own,
but overall he ignores the disease.” Gilbert
explains that people with MS usually have a
normal life span and that they don’t
die of the disease itself, but rather of various
complications.
The progression of the disease is different
for everyone. Fortunately for Gilbert, it has
been a slow course. Balance and spasticity
have been her biggest challenges, but she never
knows what will be affected next. “I
don’t worry about that,” she adds. “I
can’t wait around worrying about what
may or may not happen or when it might occur.
That’s a waste of my time and energy.” Gilbert
is a very social woman with a large network
of friends. She is an avid reader, belongs
to a book club, plays Bunko, goes to the movies
and enjoys live theater performances. “I
thought when my kids left for college that
I would be bored,” she chuckles. “But
my days are so full and I’m having too
much fun doing all the things I want to do.
Life is grand!”
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